Patients and Citizen Forum Session 4 – The European Health Data Space: Progress, News and What’s Next For Patients

🗓 Date: 8 October 2025
🕑 Time: 14:00–15:00 CET
📍 Location: Online
🎤 Organised by: QUANTUM

REGISTER HERE: QUANTUM Patients and Citizen Forum Session 4 – The European Health Data Space: Progress, News and What’s Next For Patients – Webex

💡 What’s in it for me?

The European Health Data Space is on its way, and EU Member States are actively working on challenges, technical solutions, and regulatory frameworks. Discussions are ongoing, covering topics such as privacy, interoperability, and data use.

In the 4th session of the QUANTUM Patients and Citizens Forum, we will ask our experts:

🗣️ Dr. Katharina Schneider (Bundesinstitut für Arzneimittel und Medizinprodukte, Germany) – What has happened since spring, as preparations for the EHDS are underway, and what comes next?

🗣️ Antonella Cardone (CEO, Cancer Patients Europe – CPE) – What about the patients perspective, what are the emerging questions, and how patient organisations are preparing for the EHDS?

🗣️ Carola Schulz (Senior Research Consultant and Project Manager – empirica)

🎯 Learning Goals

• Gain insights into the latest developments and next steps in the implementation of the European Health Data Space (EHDS)
• Understand key challenges around privacy, interoperability, and data use in cross-border health data exchange
• Learn about the emerging questions and priorities from the patient perspective
• Explore how patient organisations are preparing for the EHDS and shaping their role in the process