Work areas

Specification of the data quality and utility, and maturity label

• Bring together the necessary conceptual grounds and evidence for an EHDS data quality and utility label focusing on evaluating the quality of the data per se and the maturity levels of data holder’s organisations.

Lead: HDH

Design, development and testing of the label

• Design, develop and test small scale a conformance checking tool that allows:

1. Data holders to provide standardised information on the data quality and utility of their datasets
2. Data holders to report on the maturity elements
3. The inclusion of data access bodies and data users experience on the information published.

Lead: Sciensano

Mid-scale implementation of the label

1. Deploy the conformance checking tool in a larger group of data holders participating in the project.
2. Assessment of the implementation process where data holders will provide insights for transferability and sustainability.

Lead: IACS

Capacity building, community engagement and scale up

• Address the capacity building and training needs of the health data access bodies through educational and supporting materials, access to good practices documentation and recommendations to decision makers.

Lead: i~HD

Dissemination and outreach

1. Design and deploy dissemination instruments based on the QUANTUM website that is deployed using W3C standards;
2. Set up a consultation forum with research initiatives where data quality is key;
3. Set up a consultation forum for the general public;
4. Set up a linkage and exchange forum with projects whose objective is the development of HealthData@EU.

Lead: UCSC and DIGITALEUROPE

Coordination, evaluation and management

• Provide efficient management and coordination of both the project and the consortium, as well as to ensure a timely project implementation, in line with its planned objectives, and a continuous evaluation.

Lead: IACS

Ethics requirements

• Ensure compliance with the ‘ethics requirements’ set out in this work package.

Lead: IACS