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The health data quality label

Developing a data quality and utility label for the European Health Data Space.

Highlights

Quantum project kicks-off!

The QUANTUM project kicked off to create a common label system for Europe that will allow its use for scientific and health innovation purposes. These labels will enable researchers to use data with a notion of the quality and utility that will ensure that their research and innovations are effective and provide value to society.

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About us

Who we are

With a consortium of 36 partners, QUANTUM is an EU-funded project that aims to create a common label system for Europe that assesses and communicates the quality and utility of datasets in all countries for scientific and health innovation purposes. These labels will enable researchers, policymakers, and healthcare professionals to identify high-quality data for research and decision-making.

36 partners from all over Europe

30 months (2024 – 2026)

Aims to guide data quality labelling for HealthData@EU

Funded by Horizon Europe

About us

What are we doing?

What are we doing?

Conceptualise
the label

Conceptualise and develop a data quality and utility label in the context of data holder maturity model

What are we doing?

Piloting
of the label

Design, develop, and test the labelling of the data sets’ quality and utility, and data holders’ maturity

What are we doing?

Implementation and sutainability

Analyse implementation challenges to ensure the labeling process is transferable and sustainable as part of HealthData@EU

What are we doing?

Capacity building and engagement

Develop a capacity-building program that allows a broad engagement of the data quality professional community, patients and citizens

Consortium

QUANTUM brings together 27 beneficiaries, 6 affiliated entities, and 3 associated partners, forming a diverse Consortium designed to represent various roles and institutions within the governance of HealthData@EU.

Consortium partners

Main outcomes

1
September 2024

Gap analysis

Gap analysis designed to find the educational needs of the project’s stakeholders

2
March 2025

Training

Online training courses and workshops for different stakeholders’ groups

3
August 2025

QUANTUM tool

QUANTUM conformance-checking software tool available in Zenodo (v1.0) and GitHub

4
December 2025

Data piloting

Piloting of the data quality and utility, and data holder maturity labels

5
February 2026

Guidelines & specifications

Guidelines and specifications for the implementation of the QUANTUM labelling mechanism as foreseen in the legislative proposal for the development of HealthData@EU, article 56

6
June 2026

Community of practice

Community of Practice repository containing guidelines, templates, checklists and initial QUANTUM labelling experiences

7
June 2026

Exchange Platform & Academy

QUANTUM Exchange Platform and Academy to facilitate capacity building